Registry Publications

Publications on the National Palliative Care Registry™ and its data include peer reviewed journal articles, blog posts, data “snapshots” on specific topics using Registry results, and other palliative care publications. Publications appear in order of release with the most recent first.

  • Palliative-in-Practice

    Using National Data to Drive Palliative Care Program Growth and Increase Staffing Blog

    Stefanie Nemec of St. Mary Medical Center describes how she used data from the National Palliative Care Registry to drive growth for her palliative care program. Published in CAPC’s blog, Palliative in Practice, on March 8, 2018.

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  • Hospital-Trends-Palliative-Pulse

    Growth of Palliative Care in U.S. Hospitals 2018 Snapshot (2000-2016)

    In 2000, only 25% of hospitals with 50 or more beds reported a palliative care program. In 2016, that number increased to 75%. Despite this growth, barriers in access to palliative care remain. Millions of Americans with serious illness do not yet have access to palliative care.
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  • Palliative-in-Practice

    Spotlight on Pediatric Palliative Care: National Landscape of Hospital-Based Programs (2015-16) Blog

    Key findings from 52 pediatric palliative care programs (2015/2016). Published in CAPC’s blog, Palliative in Practice, on July 17, 2017.

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  • Palliative-in-Practice

    A Practical Guide to How We Work Blog

    Six practical ideas of how you can put “How We Work: Trends and Insights in Hospital Palliative Care” to good use for your palliative care program and the field. Published in CAPC’s blog, Palliative in Practice, on March 27, 2017.

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  • How-We-Work

    How We Work: Trends and Insights in Hospital Palliative Care

    A comprehensive profile of hospital palliative care programs participating in the National Palliative Care Registry™ from 2009 to 2015. The report highlights trends with the goal of providing actionable information to promote standardization and improve the quality of hospital palliative care.

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  • Hospital-Trends-Palliative-Pulse

    Pediatric Palliative Care in U.S. Hospitals, 2014-2015

    Recognizing the importance of palliative care for infants and children, the Registry has expanded to address the growing need for national pediatric data. This report provides a national profile of hospital-based pediatric palliative care programs participating in the Registry in 2014/2015.

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  • Health-Affairs-Staffing-Registry

    Few Hospital Palliative Care Programs Meet National Staffing Recommendations

    This study found that few hospital palliative care programs meet national staffing recommendations set forth by the Joint Commission. Published in Health Affairs in September 2016.

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  • The Growth of Palliative Care in U.S. Hospitals

    The Growth of Palliative Care in U.S. Hospitals: A Status Report

    This study demonstrates continued steady growth in the number of hospital palliative care programs in the United States, with almost universal access to services in large U.S. hospitals and academic medical centers. Published in the Journal of Palliative Medicine in January 2016.

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  • TN Impact of Staffing on Access to Palliative Care in U.S. Hospitals

    Impact of Staffing on Access to Palliative Care in U.S. Hospitals

    This report demonstrates that operational effectiveness, as measured by staffing and palliative care service penetration, is associated with shorter time to palliative care consultation. Published in the Journal of Palliative Medicine in December 2015.

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  • TN 2015 State-by-state Report Card

    2015 State-by-State Report Card

    The 2015 State-by-State Report Card demonstrates that access to palliative care remains inadequate for millions of Americans living with serious illness despite continuing growth in the number of U.S. hospitals reporting palliative care programs.

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